TPF member Kimberley's son Austin in the news

[groovyone]

Kimberley, I didn't see this posted and I hope you do not mind!

Epilepsy Surgery Offers Possible End To Seizures - Health News Story - KPRC Houston

If you are slow like me, here is the video link: http://www.click2houston.com/video/27883256/index.html

[TxLerman]

Great Story! Thanks for sharing.

[tx_tuff]

I read this the other day, the wife sent me a link. Keith you saw my step son Simon this past weekend on the photowalk. He has Epilepsy as well and Dr Von Allmen is his doctor. In fact our cat Gretchen is named after her (Dr Von Allmen's first name LOL). Anyway Simon had 5 brain surgeries a couple years ago, while much better he is still having seizures.

[smoothassilk]

Awesome story thanks for posting.

Mark

[groovyone]

Originally Posted by tx_tuff

I read this the other day, the wife sent me a link. Keith you saw my step son Simon this past weekend on the photowalk. He has Epilepsy as well and Dr Von Allmen is his doctor. In fact our cat Gretchen is named after her (Dr Von Allmen's first name LOL). Anyway Simon had 5 brain surgeries a couple years ago, while much better he is still having seizures.

Wow, Frank, it is a small world sometimes. I guess with specialist doctors it shouldn't be much of a surprise though. That is good that it helped to some degree. Is he on medications now?

There is a website I follow that you might be interested in: Marissa?s Bunny An Infantile Spasms Awareness Blog Mike, Marissa's dad, has an account on TPF but I am not sure if he checks in anymore. I talk to him through email a fair bit.

Also Kim has a website/blog that I am sure someone here has the link to.

[kimberley]

hey guys...thanks for posting this for me...

Frank, dr vonallmen mentioned to us that she had a patient who named their cat after her..lol..what a small world!!

[tx_tuff]

Originally Posted by groovyone

Wow, Frank, it is a small world sometimes. I guess with specialist doctors it shouldn't be much of a surprise though. That is good that it helped to some degree. Is he on medications now?

There is a website I follow that you might be interested in: Marissa?s Bunny An Infantile Spasms Awareness Blog Mike, Marissa's dad, has an account on TPF but I am not sure if he checks in anymore. I talk to him through email a fair bit.

Also Kim has a website/blog that I am sure someone here has the link to.

Checking out Mike's blog now. I found Kim's last night after you posted this thread and PMed her :)

Yes Simon is still on meds, and will even be trying a new one this summer. But right now we are pretty much at a wait and see point. But he is leaps and bounds from where he was before is surgeries!

[tx_tuff]

Originally Posted by kimberley

hey guys...thanks for posting this for me...

Frank, dr vonallmen mentioned to us that she had a patient who named their cat after her..lol..what a small world!!

That is awesome!

[groovyone]

Originally Posted by kimberley

hey guys...thanks for posting this for me...

Frank, dr vonallmen mentioned to us that she had a patient who named their cat after her..lol..what a small world!!

As long as she didn't say "You wouldn't believe this crazy...."

hahah

[MarissasDad]

Originally Posted by groovyone

Wow, Frank, it is a small world sometimes. I guess with specialist doctors it shouldn't be much of a surprise though. That is good that it helped to some degree. Is he on medications now?

There is a website I follow that you might be interested in: Marissa?s Bunny An Infantile Spasms Awareness Blog Mike, Marissa's dad, has an account on TPF but I am not sure if he checks in anymore. I talk to him through email a fair bit.

Also Kim has a website/blog that I am sure someone here has the link to.

I do stop by, from time to time. Surgery is often the best choice, especially when you can point to an area in the brain and say RIGHT THERE, THAT'S WHERE THE SEIZURES are coming from.

I wish it was universal, though. Marissa's lined up for a different surgery which will (hopefully) prevent the seizures from propagating through her entire brain like they do now.

It's all we've got left.

[tx_tuff]

Originally Posted by MarissasDad

I do stop by, from time to time. Surgery is often the best choice, especially when you can point to an area in the brain and say RIGHT THERE, THAT'S WHERE THE SEIZURES are coming from.

I wish it was universal, though. Marissa's lined up for a different surgery which will (hopefully) prevent the seizures from propagating through her entire brain like they do now.

It's all we've got left.

Micheal she and the family will be in our prayers! Not much more to say then that. Simon had two places in his brain that the seizures where starting from, both in each frontal lobe. They can not remove both frontal lobes so they removed the one causing most of them and have tried two different ways to keep the ones from the right side to spreading to the rest of the brain when a seizure happens.

[MarissasDad]

Originally Posted by tx_tuff

Micheal she and the family will be in our prayers! Not much more to say then that. Simon had two places in his brain that the seizures where starting from, both in each frontal lobe. They can not remove both frontal lobes so they removed the one causing most of them and have tried two different ways to keep the ones from the right side to spreading to the rest of the brain when a seizure happens.

I appreciate that. Other than the fundraisers we seem to be nearly constantly running with raffles and whatnot, we need all the help we can get! She's an expensive little girl...